Lived Expertise and Data Management: Trauma-Informed Approaches and Perspectives

Corporation for Supportive Housing & HITEQ Highlights

Health centers individually and collectively manage large amounts of data. Patients at health centers are asked to fill and refill out paperwork, surveys, and assessments. Many patients and providers report that the repetition of collecting the same data points can be discouraging, even appearing to undervalue their experiences. In some cases, repeating patient medical, housing, and personal histories can create harm and re-traumatization. In this webinar we explored why and how lived expertise must be sought after and valued by health centers and allied organizations to improve every stage of the data management process from collection and analysis to data sharing, access, and decision-making, including discussion about Information Blocking rules and navigating the tension between reporting and regulations. Additionally, we discussed the nexus of racial equity and lived expertise in data management. How data collected or used improperly or carelessly have the potential to harm. The webinar incorporated recommendations and practices that can be implemented in the short, medium, and long term to use data to reduce and limit the chances of re-traumatization.