Data Storyteller

In this session, participants learned why and how lived expertise must be sought after and valued by health centers and allied organizations to improve every stage of the data management process from collection and analysis to data sharing, access, and decision-making, including discussion about Information Blocking rules and navigating the tension between reporting and regulations. This session also covered the connection between racial equity and lived experience in data management.

Many health centers struggle to reap the benefits of technological advancement and investments in health information technology (health IT), while others embrace them and reap rewards. Interoperability is one such example; requiring health centers assess systems, relationships, and implementation.

There are keys to successful interoperability implementation for which health centers must develop processes, stand up infrastructure (within the system, internally and externally, and organization), and then take action.

Process refers to structured processes, policies, and procedures within the health center.

Infrastructure refers to structural capacity and ability within the health center’s technology and staffing structure.

Action refers to full implementation to the point of active and ongoing use and engagement.

This scorecard encourages health centers to consider their processes, infrastructure, and action in a number of key areas. Each area key to interoperability are to be self-graded on a scale of 1 through 5, where 1 is poorly or not yet developed and 5 is well developed. Health centers can also use this to guide discussions and monitor progress over time.

We can only End the HIV Epidemic if we work together, and that includes data sharing. Sharing important information, such as HIV test results, can help ensure optimal care for people at risk for or living with HIV coming to or from different health centers. Check out these strategies and tools to learn some tried and true strategies for data-sharing between health centers. 

This document summarizes existing literature evidence on the impact and benefits of HIE in settings similar to health centers.