Data Storyteller

Patient use of their health information accessible to them through online tools (e.g., patient portals and smartphone apps) can help empower them to make informed decisions about their health and track progress on health-related goals, potentially resulting in improved patient outcomes (1). Enabling patients to access and use the information contained in online medical records and patient portals may also provide significant health system benefits, including decreased healthcare costs and strengthened patient- physician relationships (1). In 2020, ONC published the Cures Act Final Rule to increase patient and provider access to health-related data, specifically through health IT developer adoption of secure standardized application programming interfaces (APIs) that make this information more widely available across smartphone apps (2). The API requirements, which as of 2023 have been rolled out to health care providers, enable patients to electronically access their electronic health information using apps. This brief analyzes recent data from the 2022 Health Information National Trends Survey (HINTS), a nationally representative survey of U.S. adults, to assess progress in patient access amidst implementation of Cures Rule provisions during the COVID-19 pandemic, which likely increased demand for access to online medical records. This brief also reports on methods and frequency of individuals’ access and use of online medical records and patient portals.

What is RPA and how can it benefit health centers? Download and read this HITEQ Explainer to learn all about it!

As medical care facilities seek to support patient safety and be responsive to their complete medical needs and histories, health centers also recognize that establishing an infrastructure for data sharing must be a top priority. Better practices for Health Information Exchange (HIE) increase patient wellbeing by giving providers more complete information for clinical decision making, eliminating unnecessary procedures and tests, reducing the burden of paperwork, and lowering costs. In 2020, HITEQ interviewed five groups that implemented clinical data sharing infrastructure in health care settings, including Federally Qualified Health Centers (FQHCs). A set of example use cases were developed from these interviews, and we identified ten themes that may help guide other organizations interested in implementing HIE. Information from 1424 qualified health centers and health center look-alikes from the CY2019 Uniform Data Set also informed the current impact of data sharing, indicating that technology and potential workflows exist to support HIE within FQHCs.

View the key considerations gleaned from this research to identify lessons learned related to establishing HIE within a health center setting. The resource is available in the Documents to Download section below.

In March 2019, the Office of the National Coordinator for Health Information Technology (ONC) issued a Proposed Rule, 21st Century Cures Act: Interoperability, Information Blocking, and the ONC Health IT Certification Program. ONC released a final rule in March 2020, published in the Federal Register on May 1, 2020. The Final Rule on Information Blocking prohibits actors from blocking the exchange of electronic health information and seeks to increase the ease and choices available for patients to access their data. 

Use this curricula to learn more about the basics of health information exchange. The enclosed resources are designed to be easily understood and to support health information exchange in your practice and community.